Huntsville Havoc, Alabama Chivers teaming up for charitable event to help ‘Remarkable Rylan’

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HUNTSVILLE, Ala. (WHNT) -- The Huntsville Havoc and the charity group Alabama Chivers are teaming up to help an Alabama family battling an incurable disease.

Proceeds from ticket sales for the Havoc's January 23rd home game, along with special T-shirt sales, will benefit Rylan Smith, a young girl diagnosed with Rett Syndrome.

Rett Syndrome is a neurodevelopmental disorder that affects girls almost exclusively. It is described as the symptoms of autism, cerebral palsy, Parkinson's, epilepsy and anxiety disorders all in one little girl.

"Insurance doesn't cover a lot of the cost for therapy for Rett Syndrome," said John Grimm, one of the fundraiser's organizers. "She's going to end up where she can't speak or use her arms and we're trying to fund a Tobii Communications Device for her, which tracks eye movement and translates eye movement into speech."

Grimm said it is simply a family-friendly fundraiser that encourages folks to just go to a hockey game.

"It's something we're doing with a local sports team and we don't want to disappoint them."

The group's goal is to fill Propst Arena with fans to not only help Rylan, but Grimm said to also show support for a team that is constantly supporting others.

"They do a lot for the community and it would be nice to fill up the seats one night and just have everybody in there for a reason."

To buy tickets to the game, click here.

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